Cancer in Young People in Canada 
How to apply for CYP-C data
Individual level data and aggregate level data may be requested from the CYP-C dataset (0-14 years old from 2001 to 2014; 0-18 years old from 2015 onwards). Applications may be submitted at anytime (see below) and will be considered in the order in which they are received. All proposals will be reviewed by the CYP-C Data Access, Use & Publications Committee. Once approved by CYP-C, applications must be approved by the Pediatric Oncology Group of Ontario (POGO) if they request data on Ontario patients. All applications must also receive approval from the PHAC Privacy Office.
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Patient Level Data Requests |
Aggregate Data Requests |
CYP-C Data Use Applications and Publications
Incidence of Childhood Cancer in Canada During the COVID-19 Pandemic - M Pelland-Marcotte, L Xie, R Barber, S Elkhalifa, M Frechette, J Kaur, J Onysko, E Bouffet, C Fernandez, D Mitchell, M Rayar, A Randall, D Stammers, V Larouche, A Airhart, M Fidler-Benaoudia, S Cohen-Gogo, L Sung & P Gibson
"Cancer incidence, morbidity, and survival in Canadian first nation children: a Manitoba population-based study from the cancer in young people in Canada (CYP-C) registry" - D Stammers, S Israels, P Lambert & G Cuvelier
"Mapping Children’s Cancer and Environmental Carcinogenic Emissions in Canada: An Interdisciplinary Spatio-temporal Data Mining Approach" - A Osornio-Vargas. Funding source: Cancer Research Society and Read for the Cure
"Most children with cancer are not enrolled on a clinical trial in Canada" - L Sung & J Pole
- Enrolling children with acute lymphoblastic leukaemia on a clinical trial improves event-free survival: a population-based study
- Enrollment on clinical trials does not improve survival for children with acute myeloid leukemia: A population-based study.
"Geographical variation in childhood leukemia in Canada" - M Torabi, S Israels & H Singh
"Cancer Outcomes in Canadian Indigenous Children" - S Marjerrison, Jason Pole, G Cuvelier, D Stammers, A Turner, & LSung
"Access to Hematopoietic Stem Cell Transplantation among Pediatric Patients with Acute Lymphoblastic Leukemia: A Population-Based Analysis" - T Truong, J Pole, D Wall & L Sung
- Regional differences in access to hematopoietic stem cell transplantation among pediatric patientswith acute myeloid leukemia
"Thromboembolism Incidence and Risk Factors in Children with Cancer: A Population-Based Cohort Study" - L Sung, M Pelland-Marcotte, J Pole, U Athale, K Kulkarni & L Brandao
- Severe infections following treatment for childhood cancer: a report from CYP-C
- Thrombosis is associated with worse survival in children with acute lymphoblastic leukemia: a report from CYP
“Incidence trends in pediatric central nervous system tumors in canada: a 15 years report from Cancer and Young People in Canada (CYP-C) registry” - V Larouche, N Jabado, S Perreault, B Lalonde, E Martineau, N Laflamme & D Simonyan
“Distance to the pediatric oncology center does not affect survival in children with acute lymphoblastic leukemia: a report from CYP-C” - B Michon, D Lemieux-Sarrasin, E Martineau, D Simonyan & M Pelland-Marcotte
"A Population-Based Analysis of the Presentation and Outcomes of Pediatric Patients with Osteosarcoma in Canada: a report from CYP-C" - M Horkoff, G Guilcher, T Truong, T Gurstle, A Gupta, M Bernstein & M Brindle
"Diagnostic and treatment intervals are not associated with survival in rhabdomyosarcoma" - G Cuvelier, S Oberoi, PLambert, L Sung, A Gupta & R Dyell
"Second Malignant Neoplasms (SMN) within 5 years from primary diagnosis in pediatric oncology patients in Canada: a population based retrospective cohort study" - C Ricci, KS Lim, D Subburaj, N Shukla, J Kaur, L Xie, M Laverty, D Zakaria, J Pole, M Pelland-Marcotte, R Barber, S Israels, T Tran, S Oberoi, S Renzi, T MacDonald, L Sung, & K Kulkarni
"A retrospective study of patients treated with radiation (photon vs. proton therapy) in the CYP-C database" - D Tsang, D Hodgson & S Ahmed
Proton beam therapy for cancer
"Time interval to diagnosis and treatment for brain tumors in Canadian children: Are we doing better?" - L Lafay-Cousin, D Goel, V Larouche, S Rose, E Bouffet, C Erker & S Cheng
"Prognostic factors and outcomes of infant acute lymphoblastic leukemia (ALL), hypodiploid ALL, and mixed-phenotype acute leukemia (MPAL) in Canada: a report from CYP-C" - T Tran, P Tibout, T Pincez, M Kondyli, M Pelland-Marcotte, S Cheng, S Cellot, K Kulkarni, T Truong, Um Athale, L Abbott & M Rayar
"Incidence, risk factors and outcome of anthracycline induced cardiotoxicity in pediatric oncology patients: A population based study in Canada" - T MacDonald, K Kulkarni, P Nathan, L Sung, S Rassekh, J Pole, S Oberoi & S Israels
"Seasonality in childhood cancers: A population based study from Canada" - K Kulkarni, T MacDonald, L Sung, J Pole & R Barber
"Time and space hot spots associations of childhood cancer and environmental carcinogens in Alberta" - A Osornio Vargas, S Yamamoto, C Nielsen & L Brennan
"Alberta Childhood Cancer Survivorship Research Program" - A Harper, F Schulte, G Guilcher, T Truong, K Reynolds, M Spavor, N Logie, J Lee & M Fidler-Benaoudia
"Association between socioeconomic characteristics and childhood acute lymphoblastic leukemia and Hodgkin lymphoma treatment- and survival-related outcomes in Canada" - L Jibb, D Johnston, M Rayar, T Truong, S Marjerrison, K Kulkarni, S Renzi, S Alvi & S Gupta
"Incidence, characteristics and outcomes of subsequent primary malignancies within 5 years of diagnosis in pediatric cancer patients in Canada" - K Kulkarni, J Pole, L Sung, D Zakaria & L Xie
"Outcomes according to treatment using an established protocol in patients with bilateral Wilms' tumor: A national Canadian population-based study" - R Romao, N Seemann, J Brzezinski, A Lorenzo, C Fernanadez & O Bednarek
"Survival effect of complete surgical resection of the primary tumor in patients with metastatic, high-risk neuroblastoma in a large Canadian cohort" - N Seemann, C Erker, M Irwin, S Lopushinsky, K Kulkarni, C Fernandez & R Romao
"Incidence trends in pediatric central nervous system tumors in Canada: a 15 years report from Cancer and Young People in Canada (CYP-C) registry" - V Larouche, N Jabado, S Perreault, C Bellavance, B Lalonde, N Laflamme & D Simonyan
"Epidemiology of Pediatric Tumors in Quebec: a 17-year report from Cancer and Young People in the Canada registry" - C Bellavance, B Lalonde, D Simonyan, N Jabado, S Perreault, V Larouche
"Description of type of malignancy in the pediatric population having a predisposition cancer syndrome, for the CYPC registry" - V Larouche, C Goudie, R Caya, D Simonyan & L Lafay-Cousin
"Survival outcomes of children with relapsed or refractory myeloid leukemia associated with Down Syndrome" - J Hitzler, L Sung & N Raghuram
"Outcome of late isolated CNS relapse in children with acute lymphoblastic leukemia" - P Gibson, A Bahabri, S Gupta, A Li, S Mourad, N Bradley & L Bowe
"Onco-fertility as it relates to Wilms Tumour Treatment - an analysis using the Cancer in Young People in Canada (CYP-C) database" - R Romao, A Bethune, K Moore, K Richards & D MacLellan
"Risk factors and clinical impact of thrombosis during induction chemotherapy for pediatric acute lymphoblastic leukemia: A report from CYP-C" - MC Pelland-Marcotte, U Athale, K Kulkarni, TH Tran, D Stammers, S Gupta, L Sung
"Prognostic Significance of Overweight and Obesity in Children with Cancer in Canada: a Population-Based Study" - T Tran, MC Pelland-Marcotte, A Ilinca, L Bowes, K kulkarni, J Brossard, D Mitchell, L Abbott, L Sung, U Athale, S Israels, T Truong, M Rayar, O Ledjiar
"Early Phase Study Enrolment in Canadian Children with Cancer Proximal to Death: A Population-based Study" - F Hasan, L Sung, K Widger, A Punnett, A Rapoport, D Morgenstern, S Cohen-Gogo, G Revon-Riviere, L Abbott, G Guilcher, C Fernandez, T Truong, R Deyell
"Relapsed Wilm's Tumour: The Retrospective Canadian Experience" - P Gibson, J Brzezinksy,R Grant, C Fernandez, R Romao
"Does distance to a pediatric hospital or family income influence survival outcome for pediatric patients with solid abdominal tumors in Canada: a report from CYP-C" - C Erker, O Piccolo, R Romao, K Kulkarni, E MacNeil
If you have any questions, please contact:
Randy Barber
C17 Research Manager, CYP-C Surveillance
Randy.Barber@c17.ca